According to study results published online February 16, 2012 in Arthritis Care & Research, more than half of the young women diagnosed with rheumatoid arthritis and lupus had fewer children than they had hoped to have. The study included 578 women with rheumatoid arthritis and 114 with lupus who completed a questionnaire about their reproductive history. The women were classified as interested in having children when symptoms began but who had fewer than they planned to have, interested in having children when symptoms began and had the number of children planned, or not interested in having children by the time their disease was diagnosed.
Results showed that 55% of women with rheumatoid arthritis and 64% of women with lupus who were interested in having children, had fewer than they hoped to have. Women with rheumatoid arthritis who had fewer children than they hoped for were 1.5 times more likely to have infertility issues than women with rheumatoid arthritis who had the number of children they hoped to have. Women with lupus who had fewer children than planned had 3 times the rate of miscarriage as women with lupus who had the number of children planned. More than 60% of women were not interested in having children at the time they were diagnosed. A significant number felt their disease would affect their ability to care for their children. Others were concerned that the disease itself or treatment would negatively affect pregnancy -- and there were some who feared passing on the disease to their children.
Interestingly, this story stirred some difficult memories for me. I was diagnosed at the age of 19 with rheumatoid arthritis (back in the 1970s). Over the next few years, my rheumatologist did express concern about the severity of my disease and my ability to care for a newborn, should I decide to have children. His concern weighed heavily on me at the time. If you are planning to start a family, involve your rheumatologist. You will need their guidance to have a healthy pregnancy. If you are not blessed with a biological child, remember that you can still be involved in raising stepchildren, adopted children, nieces, and nephews.
Related Articles:
- Pregnancy Advice for Women With Arthritis
- Guide to Pregnancy and Arthritis
- Women With Lupus and RA Have Greater Pregnancy Complications
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Many of us, who have been diagnosed with SLE before the age of 18 years old, have the worst diagnosis. It is not the lack of desire to have children and to marry, but the inability to have children and handle the demands of married life. Those of us, who are from the educated middle to upper middle class, concentrate instead of completing as much university education as possible and engage in academic related activities we would normally not dare. Many of us, who have been severely infirm since early childhood, became ill as a consequence of a contraindicated live-virus measles vaccine. How can that be? That can be, because many of us are born with the autosomal condition of selective IgA deficiency along with subclass IgG deficiencies, which also makes us allergic to certain immunoglobulins in IVIG. Those of you, who suffer from this autosomal condition, will not only suffer an immediate anaphylactic reaction (severe allergic response) to the live-virus vaccine, but you will also contract the measles viral infection from the actual vaccine. Once that happens, you will soon not a marked decreased cellular immunity, CNS damage like the absence of reflexes, inflamed and extremely painful ankle joints, chronic interstitial cystitis, severe and chronic state of fatigue and malaise, chronic diarrhea, horrific menses cycles and PMS (losing one to three weeks of your life per month), migraine headaches, esophageal spasms, Reynaud’s phenomenon, and other unexplained anomalies. This is what’s called “a damaged immune system.” The U.S. government will do everything in its power to preclude receiving full restitution and compensation, including full disability provisions, even if it means violating all of your civil liberties, constitutional and basic human rights.